Sarah and her mom - 4th of July at Lake of the Pines
Sarah and her mom - 4th of July at Lake of the Pines
Lindasy and Lilly - 4th of July at Lake of the Pines
Lindasy and Lilly - 4th of July at Lake of the Pines

Why We Need You

We need you to assist us in raising awareness and funds to find a cure for Rett Syndrome.

Why?

Rett Syndrome is a genetic neurological disorder that randomly strikes 1 in 10,000 girls within the first two years of life. Though Rett Syndrome may affect males, few are known to survive pregnancy. There is no cure. Our best hope is through research to understand and develop an effective therapy to find the cure.

Therapies to improve the quality of life remain elusive. The continued outcome of this disorder is a life time of full time care even for the most basic needs. Specialized equipment, surgeries and full time care from a parent or sibling becomes a standard part of life for these children. These children face a lifetime of dependency, employment and care issues.

Imagine the following for those with Rett Syndrome:

There is hope and research. They deserve all of the opportunities and experiences that we have in our lives.

This is why we need you.